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Fibromyalgia Symptoms
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12 Days/12 Hours Confusion
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Author: dew (---.nmci.navy.mil)
Date: 08-11-04 11:55
I am somewhat new to fibro (maybe?), my doc and I have suspected
its onset for a few months. Yesterday was a "bad day" so I
went in to see the doc on a "bad day" since for some reasons
all my appointments with her seem to happen on the "good
days." She decided to run some blood work since I was in the
middle of my "bad day" and now depending on the results of
these last few blood tests, I will be going to a rheumatologist, for
the obvious reasons. She did do some poking and prodding, but admitted
she didn't remember where all the fibro points are exactly. The spots
she did hit, I flinched, but at the same time those are the spots where
I usually have pain, that seems to be made better with a gentle massage
as opposed to poking and prodding.
I have recently noticed a pattern in my "bad days" where
every 12 days I am completely knocked off of my feet, stuck in bed,
hoping the world will stop spinning, the pain will go away, and knowing
I need to get up and eat something for my hypoglycemia. I usually sleep
part of the time and the strangest part is that I only sleep for 12
hours minus however many hours of sleep I got the night before. Since I
have recently been having issues with insomnia as well, that could mean
a lot or a little of sleep during the day. After that I am just stuck
there in pain staring at the ceiling trying to figure out what caused
it all.
I have been trying to figure out all my triggers for the reactive
hypoglycemia. We thought that these "bad days" were just
because I had had something I wasn't suppose to and I went hypo. So
started doing blood glucose monitoring, and found out, I am fine as far
as my blood glucose levels are concerned. So now we think it is
possibly a fibro flare up (?) or possibly migraines since the migraine
meds worked some for yesterday's episode.
Anyways, I am obviously very confused about my health right now,
and as usual, stumping the doctors (running about every blood test
known to mankind). Though I must admit the doc I am going to now is the
best I have ever been too, and until the possibility of fibro, she has
helped tremendously with everything even the reactive hypoglycemia. So
short story long, I was wondering if anyone else has a pattern in their
flare ups or had any clue what could be on a cycle of 12 days. 14 I
could understand, but 12 has me stumped. Sorry I got to rambling, but I
hope someone might have a clue as to what might be going on.
Thanks
in advance. :)
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RE: 12 Days/12 Hours Confusion
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Author: Rebecca (---.reding01.pa.comcast.net)
Date: 08-11-04 13:03
Hi Dew,
I can't say that anyone here has ever identified such a specific
pattern of on again/off again symptoms, however, many of us seem to
cycle with good days, weeks/bad days, weeks.
Since your doctor seems very open to finding ways to diagnose you,
take a look at this post from DeeOhio. You may want to print it out for
your doc. It details some testing done in Canada that claims to
conclusively diagnose fibro:
http://www.efibro.com/read.php?f=60&i=8590&t=8590
Best of luck to you and please keep us posted!
Rebecca
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RE: 12 Days/12 Hours Confusion
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Author: suz the frog (---.tnt2.quebec-city.qb.da.uu.net)
Date: 08-11-04 14:53
Hi everyone
Dew,
Could it be that these cycles have something in common with your
"woman cycles"... Say, you get worse around ovulation time,
then around PMS/beginning of your period ? Just wondering, cause we
hear more and more about the hormonal implications of fibro, and to me,
it has always been clear that there was a patter between fibro
fluctuations and my menstrual cycle.
Rebecca (and Dew, and Dee, and everyone)
I just wanted to point out something about this "test for
fibro" that this Canadian man Donald Scott mentions in his
articles on mycoplasma infections. I don't mean to be judgemental here,
and personnally the mycoplasma theory has always intrigued me, and made
me go : "what if..." I have come across the article posted by
Dee about 2 years ago, and some others written by the same
guy/organization (Consumer Health Organization of Canada).
I must tell you that it is far from being acknowledged and taken
seriously by "our medical community", and basically, the only
place you'll get the mycoplasma infections tests he mentions is in your
dreams.... or by doing Donald Scott says he has helped people get their
disability pension approved by supposedly providing the
"proof" that was missing, thanks to the mycoplasma
evidence... But believe me when I say that if so, these people were
very, very, very lucky... Donald Scott and the Consumer Health
Organization are at best controversial, at worse ignored and/or
ridiculized because they try to expose a "conspiracy theory"
as the source of many diseases among which fibro. According to it, the
goverment and army would be responsible for suspicious "biological
weapon experiments" that basically led to spreading nasty
bacterias over our heads. They have quite a few books and videotapes
adressing that topic that they sell through their site
www.consumerhealth.org.
Again, I am not personnally judging them or their theory, as I
believe that unfortunately, some of what we can read on their site may
very well have some truth to it.... But if you go to your Dr with that,
be prepared to encounter some "resistance"...
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RE: 12 Days/12 Hours Confusion
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Author: dew (---.nmci.navy.mil)
Date: 08-11-04 15:22
Well at first we thought it might be related to my cycle, but
apparently, it's not. Twelve days, and I'm on the patch with a 28 day
cycle. I have had it happen in week 2, 3, & 4. The next 12 day
episode (if it happens) is actually suppose to fall on week 1. So who knows we will
see.
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RE: 12 Days/12 Hours Confusion
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Author: DeeOhio (---.proxy.aol.com)
Date: 08-11-04 15:37
Welcome Dew!!!
I hope you can find out what is wrong, my flairs are never steady,
the hit & miss, no set pattern.
There are articles here though that describe all of the pressure
points if you'd like to show that to your doctor.
Unfortunatly, Suz is right.
No one exactly knows everything about Fibro, they are all trying
hard, maybe even grasping at straws to help us, but they do not know
any one thing for sure.
I try to post as much info as I can on this site, & think that
it may help at least one person here, & if it can do that, then it
is worth it to me.
SUZ;
Was there another Dee on here before? I saw you mentioned something
posted from a Dee 2 yrs ago.
I wish I had found this site 2 years ago. I've only been here a few
short months.
Thanks so much for your input though, maybe someday soon we will
know for sure what makes us so sick & they will find a cure for us.
God
Bless you all,
Dee
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RE: 12 Days/12 Hours Confusion
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Author: Kathy - MS (---.itsd.state.ms.us)
Date: 08-11-04 17:10
When I was first diagnosed with FM it was only after I had seen my
dr twice in a 30 day period - and he had run several blood tests
looking for lupus, arthritis, etc...being negative every time. Both
times I saw the dr, I told him that is felt like my body had shut down
that I did not have the energy to even get out of bed. I feel like my
"flares" did go in a cycle about every 15 to 20 days -
finally my dr (general practioner) sent me to a rheumatologist where
she diagnosed my with FM. My regular dr told me later that he suspected
FM, but wanted to have his suspensions verified. I still have bad
days/good days, but at least I know what I have and can deal with it -
it is the not knowing that had me so stressed out which I know can also
make the "flares" happen. I take my meds and try to rest as
much as I can.
have a
"good day"
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RE: 12 Days/12 Hours Confusion
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Author: suz the frog (---.tnt2.quebec-city.qb.da.uu.net)
Date: 08-11-04 17:38
Hi Dee,
LOL, I don't recall another Dee... blame the confusion on my
"2nd language English". What I actually meant in my post is,
I first found out about the mycoplasma infection theory about 2 years
ago, on other sites such as :
http://www.edensbest.ca
http://www.shasta.com/
http://www.cfsresearch.org/mycoplasma/index.htm
http://www.immuno-sci-lab.com/
(and also the Immune Support website (Gary Nicholson), and Dr
Mercola's website)
Donald Scott & the Consumer Health Organization's work (on
mycoplasma and on other related topics) can be found at :
http://www.consumerhealth.org
And Dee, you still can benefit what was posted on this site 2 years
ago, it's all still there for anyone to search. ;-) ;-) ;-)
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RE: 12 Days/12 Hours Confusion
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Author: DeeOhio (---.proxy.aol.com)
Date: 08-11-04 20:01
Thanks Suz,
I thought for a second I was stealing someones name....lol...yep I
know how that Fibro fog goes...not fun, but can be funny.
Sometimes I sit & think about something real dumb I did cuz of
"Fog", & laugh my but off, like the time I baked a cake
for my sons B-day, & frosted it all nice & pretty, then I put
it in the oven after it cooled down to hide it from my son until later.
When it came time for dinner, I guess you know I forgot the cake
& turned the oven on to pre-heat it....you can imagine the mess I
had....LOL
Anyway, thanks for the info, I have read some of the back posts, I
should spend time reading them all, as I love all the info I can get.
God
Bless,
Dee
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RE: 12 Days/12 Hours Confusion
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Author: Julie (---.server.ntli.net)
Date: 08-12-04 05:57
Astrology for years has been know to work in cycles..... the moon travels
around our charts every 28 days and on its way it touches planets and
makes aspects which influence how we feel both mentally and physically.
If there are two planets that you were born with that are in
opposition then approx every 2 weeks you will experience the power of
these planets..... and because it is an opposition it means that a hard
time will occur.
it's only an idea... obviously some people will find it hard to
believe that any planet can affect us personally.... however the tides
of the sea are affected by the moon and if we are made up of at least
80% water should we not be affected... yes we are - women in particular
have 28 days cycles - just like the moon.
If the moon affects us why not the other planets ? I respect other
people whom find it incredulous to believe in astrology but some of the
greatest minds in science have studied it and agree with its
findings.... newton, einstien etc :
As for the people who are skeptical I understand .... how can you
believe in something you have not studied. One chap called Michael
Gaulquin [ I think that is how you spell it ] went out to prove
astrology wrong.... he ended up admitting he couldn't disprove it and
went on to write books about astrology...
Could we Fibros be extra sensitive to the rythmns and cycles of the
universe ?
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RE: 12 Days/12 Hours Confusion
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Author: suz the frog (---.stmbpqxqac01.dialup.ca.telus.com)
Date: 08-12-04 10:04
Hi Julie,
Although I am not big on astrology, I guess I share a
"ground-belief" with you here, regarding the rythms and
cycles of the universe, which from my standpoint is a matter of energy.
Energy is there in all living creatures, but also in nature... We
don't have to be yogis or Chinese doctors from the past milleniums to
see that, it's not even as esoteric as some would like us to believe...
Let's just think about the violent storms with lightening and thunder,
the power of water /wind / sun that is used to produce electricity, the
infuence of the moon on tides, just to give a few exemples.
We human beings are made of energy, both physically and
emotionnally. When we are sick, our energy isn't "working" as
well, we are more vulnerable. Everybody's energy is to a certain extent
influenced by the energy of surrounding people, animals and environment.
We are all part of the same universe, but as "chronically sick
people" we are in constant energy vulnerability, which in my
opinion makes us less "shielded" if I may say so. A perfect
"down-to-earth" exemple of that woudl be the way our symptoms
vary with the weather changes, not only from hot to cold or damp to
dry, but also from higher to lower barometric pressure, etc. After a
while, we can even predict what's coming even before the obvious signs
appear !
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